| ARCHETYPE ID | openEHR-EHR-OBSERVATION.epic_cp.v0 |
|---|---|
| Concept | EPIC CP |
| Description | EPIC CP is short for Expanded Prostate Cancer Index Composite for Clinical Practice, and is a clinical tool to measure urinary, bowel, sexual and vitality/hormonal health with an overall prostate cancer quality of life score. |
| Use | Use to record an individuals subjective urinary, bowel, sexual and vitality/hormonal health in the last four weeks within a prostate cancer context. Questions are filled/answered by the individual. Symptom scores are then calculated from 5 different domains with up to 60 point total score. 0 points would represent the least negative impact on an individuals experienced quality of life, while 60 would represent the most negative impact on an individuals experienced quality of life. The 5 symptom scores are Urinary incontincence symptom score, Urinary irritation/obstruction symptom score, Bowel symptom score, Sexual symptom score, and Vitality/hormonal symptom score, which are then all added to represent an Overall Prostate Cancer QOL Score. |
| Purpose | To record urinary, bowel, sexual and vitality/hormonal health. EPIC-CP is an assessment tool constructed to record urinary incontinence, urinary irritation, bowel, sexual and hormonal health related quality of life domains. |
| References | Chang P, Szymanski KM, Dunn RL, Chipman JJ, Litwin MS, Nguyen PL, Sweeney CJ, Cook R, Wagner AA, DeWolf WC, Bubley GJ, Funches R, Aronovitz JA, Wei JT, Sanda MG. Expanded prostate cancer index composite for clinical practice: development and validation of a practical health related quality of life instrument for use in the routine clinical care of patients with prostate cancer. J Urol. 2011 Sep;186(3):865-72. doi: 10.1016/j.juro.2011.04.085. Epub 2011 Jul 23. PubMed PMID: 21788038; PubMed Central PMCID: PMC3807735. Chipman JJ, Sanda MG, Dunn RL, Wei JT, Litwin MS, Crociani CM, Regan MM, Chang P. Measuring and predicting prostate cancer related quality of life changes using EPIC for clinical practice. J Urol. 2014 Mar;191(3):638-45. doi: 10.1016/j.juro.2013.09.040. Epub 2013 Sep 25. PubMed PMID: 24076307; PubMed Central PMCID: PMC5006995. Quality of Life Assessment Tool for Prostate Cancer. [Internet]. Beth Israel Deaconess Medical Center; 2022. Available from: https://www.bidmc.org/centers-and-departments/cancer-center/cancer-center-programs-and-services/prostate-cancer-center/prostate-cancer-faqs/epic/. |
| Copyright | © openEHR Foundation |
| Authors | Author name: Mikkel Johan Gaup Grønmo Organisation: Regional forvaltning EPJ, Helse Nord RHF Email: mikkel.johan.gaup.gronmo@helse-nord.no Date originally authored: 2022-02-08 |
| Other Details Language | Author name: Mikkel Johan Gaup Grønmo Organisation: Regional forvaltning EPJ, Helse Nord RHF Email: mikkel.johan.gaup.gronmo@helse-nord.no Date originally authored: 2022-02-08 |
| Other Details (Language Independent) |
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| Keywords | prostate cancer, quality of life |
| Lifecycle | in_development |
| UID | 93499565-2d1b-41c4-9776-4fc6b9466e62 |
| Language used | en |
| Citeable Identifier | 1246.145.2514 |
| Revision Number | 0.0.1-alpha |
| protocol | |
| Extension | Extension: Additional information required to capture local context or to align with other reference models/formalisms. For example: Local hospital departmental infomation or additional metadata to align with FHIR. Include: All not explicitly excluded archetypes |
| data | |
| 1 Urinary function | 1 Urinary function: Overall, how much of a problem has your urinary function been for you? Question 1
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| 2 Urinary control | 2 Urinary control: Which of the following best describes your urinary control? Question 2 0: Total control 1: Occasional dribbling 2: Frequent dribbling 4: No urinary control |
| 3 Pads or adult diapers | 3 Pads or adult diapers: How many pads or adult diapers per day have you been using for urinary leakage? Question 3 0: None 1: One pad per day 2: Two pads per day 4: Three or more pads per day |
| 4 Urinary dripping or leakage | 4 Urinary dripping or leakage: How big a problem, if any, has urinary dripping or leakage been for you? Question 4 0: No problem 1: Very small problem 2: Small problem 3: Moderate problem 4: Big problem |
| Urinary Incontinence Symptom Score | Urinary Incontinence Symptom Score: ADD the answers from questions 2‐4 to calculate
the Urinary Incontinence Symptom Score (out of 12). min: >=0; max: <=12 |
| 5a Pain or burning with urination | 5a Pain or burning with urination: How big a problem, if any, has the following been for you? Question 5a 0: No problem 1: Very small problem 2: Small problem 3: Moderate problem 4: Big problem |
| 5b Weak urine stream/incomplete bladder emptying | 5b Weak urine stream/incomplete bladder emptying: How big a problem, if any, has the following been for you? Question 5b 0: No problem 1: Very small problem 2: Small problem 3: Moderate problem 4: Big problem |
| 5c Need to urinate frequently | 5c Need to urinate frequently: How big a problem, if any, has the following been for you? Question 5c 0: No problem 1: Very small problem 2: Small problem 3: Moderate problem 4: Big problem |
| Urinary Irritation/Obstruction Symptom Score | Urinary Irritation/Obstruction Symptom Score: ADD the answers from questions 5a‐5c to calculate the
Urinary Irritation/Obstruction Symptom Score (out of 12). min: >=0; max: <=12 |
| 6a Rectal pain or urgency of bowel movements | 6a Rectal pain or urgency of bowel movements: How big a problem, if any, has the following been for you? Question 6a 0: No problem 1: Very small problem 2: Small problem 3: Moderate problem 4: Big problem |
| 6b Increased frequency of your bowel movements | 6b Increased frequency of your bowel movements: How big a problem, if any, has the following been for you? Question 6b 0: No problem 1: Very small problem 2: Small problem 3: Moderate problem 4: Big problem |
| 6c Overall problems with your bowel habits | 6c Overall problems with your bowel habits: How big a problem, if any, has the following been for you? Question 6c 0: No problem 1: Very small problem 2: Small problem 3: Moderate problem 4: Big problem |
| Bowel Symptom Score | Bowel Symptom Score: ADD the answers from questions 6a‐6c
to calculate the Bowel Symptom Score (out of 12). min: >=0; max: <=12 |
| 7 Orgasm (Climax) | 7 Orgasm (Climax): How would you rate your ability to reach orgasm (climax)? Question 7 0: Very good 1: Good 2: Fair 3: Poor 4: Very poor to none |
| 8 Erection quality | 8 Erection quality: How would you describe the usual quality of your erections? Question 8 0: Firm enough for intercourse 1: Firm enough for masturbation and foreplay only 2: Not firm enough for any sexual activity 4: None at all |
| 9 Sexual function | 9 Sexual function: Overall, how much of a problem has your sexual function or lack of sexual function been for you? Question 9 0: No problem 1: Very small problem 2: Small problem 3: Moderate problem 4: Big problem |
| Sexual Symptom Score | Sexual Symptom Score: ADD the answers from questions 7‐9 to
calculate the Sexual Symptom Score (out of 12). min: >=0; max: <=12 |
| 10a Hot flashes or breast tenderness/enlargement | 10a Hot flashes or breast tenderness/enlargement: How big a problem, if any, has the following been for you? Question 10a 0: No problem 1: Very small problem 2: Small problem 3: Moderate problem 4: Big problem |
| 10b Feeling depressed | 10b Feeling depressed: How big a problem, if any, has the following been for you? Question 10b 0: No problem 1: Very small problem 2: Small problem 3: Moderate problem 4: Big problem |
| 10c Lack of energy | 10c Lack of energy: How big a problem, if any, has the following been for you? Question 10c 0: No problem 1: Very small problem 2: Small problem 3: Moderate problem 4: Big problem |
| Vitality/Hormonal Symptom Score | Vitality/Hormonal Symptom Score: ADD the answers from questions 10a‐10c to calculate
the Vitality/Hormonal Symptom Score (out of 12). min: >=0; max: <=12 |
| Overall Prostate Cancer QOL Score | Overall Prostate Cancer QOL Score: Add the five domain summary scores to calculate the Overall Prostate Cancer QOL Score (out of 60). min: >=0; max: <=60 |
| events | |
| Any event | Any event: Default, unspecified point in time or interval event which may be explicitly defined in a template or at run-time. |
| Other contributors | |
| Translators |